I suspected my daughter had the above condition back in April, so had her GP refer her to an Endocrinologist.
She saw the Endocrinologist in July 2009, and had the test for glucose intolerance done in August 2009.
Positive results have been given this September 2009, stating her baseline insulin level was 180 pmol/l which rose to 335 mmol/l. (Consistant with Insulin Resistance). Her glucose baseline was normal at 5.0 mmol/l but rose after 2 hours to 9.0 mmol/l.
Now this is where I get stuck with what to do now...
I had to send a lengthy email to her specialist at Birmingham Childrens Hospital to milk him for the above information. In the process I had to practically twist his arm for him to provide my daughter of 15 years with metformin to control this condition. (He professed to not be a specialist in this field and agreed she should be on this medication!).
My concerns are that we dont get to see this specialist until November 2009. In the meantime I have thousands of questions that remain unanswered what should we do?
My daughter only had one glucose intolerance test. I believe her sugars go higher and probably lower than 5.0 mmol/l, so I suspect my daughter is actually already diabetic, because most of the time she is so tired that she spends her days in bed. She has an unquenchable thirst at best and can not get rid of a water infection.
She finished a course of antibiotics (prescribed by her local GP) and then had her sample sent away for cultivation, where it proved the problem was still there. Shes finished yet another longer course of medication only to have another test sent away because we know she still has the infection....
Why isnt my local GP realising that this is the first sign for her being Diabetic...?
Should not my daughter be testing her bloods daily?
What should I be doing when it is clear her sugars are high (drinking loads and very tired)?
Not to mention when low as she is shaky, and limp?
We have been totally left in the lurch and feel that medical negligence is happening, so what do we do?
Her GP still has absolutely no idea what Acanthosis Nigricans is, so she is of little use. I just feel like me & my husband are knocking our heads up the wall.....
What do we do in answer to so many of the above questions?
Does she sound diabetic now? Should we just march her up the local hospital to fast track her help??
Were from Staffordshire ENGLAND.....
Lori G
Going to the hospital would at least answer your question if her sugar is high. Take her there after she eats a big meal, and that'll give you a postprandial sugar (the highest it usually gets during the day). Also, are you sure your daughter doesn't have a vaginal yeast infection rather than a bladder infection? (yeast infections are common in diabetics, and may be the reason her symptoms aren't going away!)
You probably ought to ask to be seen by a reproductive endocrinologist. They specialize in disorders like PCOS. Of course, it'll be a month or so to get in, if it's anything like in the US...
Have you considered a new GP? You should just be able to ask for a prescription for a glucometer and supplies and check her sugars at home, that is totally reasonable. Call and ask for one if you haven't already. (They may be available for puchase at the pharmacy without a prescription as well, I don;t know about the UK for sure-)
Orignal From: Severely Insulin Resistant with Acanthosis Nigricans....?
Post a Comment